Timeline of Hospitalizations

  • January 22, 2017 – Bailey is born (3 days)
    • January 22 – January 24 admission, IV antibiotics for chorio and beginning of workup for Biliary Atresia
  • January 28, 2017 – February 16, 2017 – Admitted for Kasai Surgery and “cholangitis” (20 days)
    • January 30, 2017 – Kasai Surgery
  • January 4, 2018 – January 12, 2018 – Admitted for Cholangitis (9 days)
  • April 12, 2018 – June 8, 2018 – Admitted for Cholangitis, non-stop fevers, infected pseudomonas fluid at the roux loop (58 days)
    • May 23, 2018 – Listed for Liver transplant
  • June 11, 2018 – June 21, 2018 – Admitted for LIVER TRANSPLANT (11 days)
    • June 11, 2018 – Got the call to come in!
    • June 12, 2018 – Liver transplant surgery
  • June 22, 2018- June 24, 2018 – Admitted for Parainfluenza (48 hour culture rule out) (3 days)
  • July 3, 2018 – July 12, 2018 – Admitted for Rejection; 5 days IV steroids after liver biopsy (10 days)
    • July 3, 2018 – Liver Biopsy done (results back on the 6th because of the 4th of July holiday and flood on the 5th, steroids started the 7th).
  • October 1, 2018 – October 4, 2018 – Admitted for EBV > 190,000 and fever and not acting herself (48 hour culture rule out) (4 days)

8 total hospital stays

118 total days in the hospital

It’s so humbling to total up all these days spent in the hospital. Days spent away from home. Nights Bailey slept in a hospital crib. Days spent interacting with nurses, doctors, and surgeons. Days multiple members of our family each paid $12 to park at the hospital to come visit Bailey or bring us dinner. It just makes me that much more thankful to be home. And even after all these days spent living in the hospital, I don’t think Bailey is the least bit developmentally behind. She sleeps through the night. She is an excellent nap taker. She eats regular food. She plays. She walks. She runs. She laughs. She talks. She throws fits when she doesn’t get her way. Her only issue is stranger danger, and who can blame her for that one?

I know this list of dates will probably just continue to grow and the days will continue to add up. But hopefully the worst is behind us. I am thanking God everyday for leading us to where we are now, and giving him ALL the glory and honor.

 

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